Dance the Cure

Move. Give. Pass it on.

A movement to end amyotrophic lateral sclerosis (ALS) and support patients and caregivers in living more fully. A proud supporter of the ALS Society of Canada.

Dance is not the cure.

But it can help find one.

  •  Print silhouette of man with arms open and motor neuron centred at heart

    What is ALS?

    Amyotrophic lateral sclerosis (ALS) is a devastating disease with no cure and few meaningful treatments. It causes the progressive degeneration and death of motor neurons in the brain and spinal cord. As those neurons die, muscles lose the signals they need to move, causing weakness, wasting, and paralysis.

  • Two hands, one dark green and one plum, with motor neuron between them.

    The Power of Research

    Research can change what an ALS diagnosis means. It can help scientists understand why motor neurons die and develop interventions that protect them, slow degeneration, or stop it entirely.

  • Silhouette of figure holding urn overhead with neuronal  pathway and plum silhouettes of dancers

    The Inspiration

    Dance the Cure carries forward the spirit of Anthony Senerchia, Pete Frates, and Pat Quinn—three young men living with ALS who helped turn a simple public action into a global movement. In 2014, well over 17 million people participated in the Ice Bucket Challenge, raising over $220 million worldwide for ALS organizations.

  • Print of two dancing figures and a motor neuron connecting them.

    Move.

    Create a short dance sequence or movement response. Choose a song, a memory, a feeling, a gesture—or begin with one of the movement prompts featured on this site.

  • Two hands with a motor neuron centred between them

    Give.

    Donate or raise funds for ALS research through the ALS Society of Canada.

  • Four figures dancing in a circle similar to painting by Matisse. One figure in wheelchair and one with a cane. They are connected by a neuronal pat

    Pass it on.

    Invite a minimum of three people to respond with movements and donations of their own.

Begin where you are.

Dance badly. Dance beautifully. Dance furiously.

Dance for thirty seconds in your kitchen.

You don’t need choreography, flexibility, rhythm, or a particular kind of body.

Dance with your whole body—or with only one part of it. Ask another person to dance on your behalf.

Then invite someone else into the dance.

Every body belongs

  • Dance together.

    Dance joyously and dynamically. Simply or subtly.

  • Dance solo.

    Perform standing, seated, or lying down.

  • Dance outside.

    Stage it in an alleyway or garden.

  • Dance upside down.

    Sequence a series of nods or toe taps. Blink or breathe to the beat.

  • Dance inwardly.

    Stop performing and dance in rest.

  • Dance outwardly.

    Expand your perception of the dance.

  • Dance diminuitively.

    Ignite the tiniest gestures.

  • Dance en masse.

    Rave. Tango. Swing.

Why ALS research?

“ALS is not an incurable disease. It’s an underfunded disease.”

When a fellow patient shared these words, I realized that what is incurable today need not remain incurable forever. Scientific research has transformed other illnesses that were once considered inevitably fatal. With sufficient funding, imagination, and collective will, we can transform ALS too.

While my passion for life and love of dance inspire this movement, Dance the Cure acknowledges the harsh reality of this disease. I am dancing because people with ALS deserve better treatments.

I am dancing because a cure will not discover itself.

My name is Nancy, and I have ALS.

I am a writer, artist, educator, trained yoga teacher, and graduate of Trinity Laban Conservatoire of Music and Dance. I began taking my love of dance seriously in the wake of my first diagnosis of breast cancer. My interdisciplinary PhD in poetry and performance explored contemporary artistic approaches to grief and loss.

In July 2025, around the time I learned I had cancer for the second time, I began developing debilitating pain and weakness in my left shoulder. A series of scans revealed nothing that might explain the range of my symptoms; meanwhile, I was struggling to turn keys, put in earrings, and open jars. In April of 2026, my ring finger “dropped,” and the pad beneath my thumb hollowed out. 

Nerve conduction studies (NCS) and electromyography (EMG) in July 2026 evidenced extensive lower motor neuron dysfunction and muscle denervation throughout my upper limbs.

My neurologist considers my symptoms to indicate a rare phenotype of ALS called brachial amyotrophic diplegia (BAD), sometimes referred to as flail arm syndrome (FAS). Although ALS often comes with a crushing prognosis, this variant tends to progress more slowly.

In the wake of learning I have "BAD," I've felt the urge to dance as "bad" as Michael Jackson—for as long as I can.

I invite you to dance with me.

Follow the movement.

Dance the Cure is a community fundraising campaign in proud support of the ALS Society of Canada.

Founded in 1977, the ALS Society of Canada works with the ALS community to improve the lives of Canadians affected by ALS through research, care, advocacy, and information. In Ontario, it also provides direct community services and equipment support.

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